Huntington's Disease Destroyed my Future 1st Edition

I want to thank the author for sharing her experience with HD. It helps to read another's account of living a life affected by this disease--as fully and happily as possible. We are also determined, as she and her family appear to be, to be mindful that the point is: to be thankful for life, to watch for, and be ready to receive life's joys and blessings in the midst of the work. I am hopeful that we will meet future challenges with courage and grace, as she has. (As for how often to visit the ill spouse--no one can know the cost of these visits to you & your children but yourselves. God bless you.) My heart goes out to her, to my daughter, who is also a mother of children at risk, and to any who find themselves living these challenges.

Very interesting read! Lots of factual info! Very helpful! Information.

I struggle daily with everything in this book. H.d. consumes a family. The thoughts are as if she read my mind. I wish everyone I know would read it because I have moments when I want to scream at my friends for their trifles.

A must read if you are interested in Huntingtons disease, keeps you wanting to read more and more, and never stop.

Should have known by the title that this was a big pity party, nothing but poor me. Whatever happened to the person who was afflicted and the children facing the possibility of this horrible disease? It's not "her" life that is ruined, but theirs. My husband was diagnosed with this disease at a much older age than is usual. So I am looking for enlightenment and coping skills, neither of which the author seems to possess.

Very brave and honest writing. The writer says 'I'm not a writer', and apologises for that. But she is a writer, and shares how devastating this situation she and her family are in is, and shares it very well and eloquently. My family is in the same situation with Huntington's Disease. She shares it honestly, clearly, movingly, and you get a strong sense of no matter how hopeless things look from one day to the next, from one setback to the next, that we all - even when we think initially that we can't - can on behalf of our family find the strength to push on and make the best we can of an impossible situation. It's a short book and I welcomed that as I find I can't immerse myself in a long read on this subject and then come up for air and find, oh, I'm dealing with the same thing in real life :) . I can only read this kind of thing in short bursts. It's a one or two hour read where you can recognize everything she describes and then, when you put the book down at the end, you do what the author does, get up and get on with it. Good luck to her and her family. Thank you for writing this.

Thank you for bearing your heart, your fears for the future and for telling your story so honestly. I have worked with people with H D and their families for over 10 years and understand the every day complexities of living with H D in the family. You write honestly, it's okay to be angry and hurt when life throughs devastation your way but what's important you have kept the family together throughout. You should be proud !!!

I thought this book would be about a family coming to terms with Huntingdon's disease and that is why I brought it. It don't say a great deal about the disease, All it is about is the author and how miserable she is. If, like me you need to know about how people cope with this horrible disease then this is not the book to buy. Sorry!

The author has shared her story as an act of love for her children and her wonderful and inspiring husband. She has also, unselfishly, offered her personal experience of being in a relationship with someone with Huntington's which will help raise awareness of a disease which is so desperate for recognition. In doing so, she has also reached out to HD carers and family units; tapping into their overlooked needs.

Good insight into living with Huntington's, which I needed to know about.